War on Melanoma: Enlisting a cohort of melanoma survivors and their families
The purpose of this data repository, called the Melanoma Community Registry, is to develop a prospective cohort of melanoma patients, family members and friends (controls). This registry will serve as a data repository for future IRB-approved research and thus will collect, store and share data with melanoma researchers for an indeterminate period of time. In addition, our repository will contain identifying codes/numbers that are links to data/samples in other relevant databases. Additionally, it is intended to deliver a ready-to-act group of volunteers to participate in the War on Melanoma campaign to include such things as attending educational symposiums and using their networks to increase awareness of the issue. There is no existing nationwide registry for melanoma research. As patient-centered research advances, a resource like this is needed and can serve as a model.
Melanoma, patient quality of life, health behaviors
Inclusion Criteria are (1) personal history of any stage of melanoma, 2) a blood relative of a melanoma patient such as a parent, sibling, child, aunts/uncles or first cousins, 3) no personal or family history of melanoma (can serve as controls) and (4) provide informed consent.
Healthy Volunteers Needed
Duration of Participation
Pamela Cassidy 503-494-9047