[NCI CIRB] The National Myelodysplastic Syndromes (MDS) Study

Principal Investigator

Rachel Cook

Study Purpose

The primary purpose of this project is to collect blood, bone marrow and other tissues (hair follicle (eyebrow or hairline sampe), cells from the inside of your cheek (also called buccal cells) and information from people diagnosed with one of the blood disorders included among Myelodysplastic Syndromes (MDS). This knowledge will allow doctors to better understand how MDS changes over time and may lead to better ways to prevent, detect, and treat MDS. The samples and information collected will be used to create a database and central biorepository (a special laboratory where samples are stored) that will be used for future research.

Medical Condition(s)

Myelodysplastic Syndromes

Eligibility Criteria

-Recently diagnosed with one of the blood disorders included among MDS, or having a bone marrow sample collected to determine if you have MDS.
-Age 18 or older
-No prior treatment for mMDS

Age Range

18 - n/a

Healthy Volunteers Needed


Duration of Participation

All patients who agree to be in the study may be followed for life. Information for the study will be collected during office visits, by phone, by mail, or by medical record review. This will occur every 6 months.

Minors Included



Clinical Trials Information Line
Phone: 503-494-1080


This study is being sponsored by the National Heart, Lung, and Blood Institute (NHLBI) and the National Cancer Institute (NCI). The NHLBI and NCI are part of the US government agency known as the National Institutes of Health (NIH).

Recruitment End


Compensation Provided


Go Back